Ever since Cymmone was able to use the toilet and speak, she has gotten multiple Urinary Tract Infections. She has one about every 3-6 months. Recently she has stopped telling me when she hurts. The only way I know, is when she wets the bed at night. A few weeks ago I had taken her to the doctors. Apparently she wet the bed at her dad's house over the weekend, but neither of them mentioned it to me.
That is really the only sign she has one anymore. So when I found out, I took her to the doctors first thing in the morning. I had heard enough excuses from the specialists and doctors we were going to, I was fed up. But this doctor, he did not want to hear what I was saying. He kindly wrote a prescription and sent us on our way.
When we went to church on Sunday, I brought her up front for special prayer. There is something about everyone at church praying for her at once, and all 20 deacons, pastors, ministers and reverends. I needed to know what was wrong, and needed God to touch me with the knowledge I needed to put the doctors in the right direction with this.
Prayer - Works! A week later, she was showing signs of yet another one. So about 7 days after she finished the meds the first doctor gave her. When I took her back to the doctors this time, I was just so darn frustrated, because she was telling me how mych pain she was in. I cried and cried at the office. Begged them to please listen to me. This was her 6th one this year. Finally, she said, this is just not right. This doctor said lets get some samples and run some tests, and get her to a specialist.
The specialist they wanted to send her to, was the first one she saw. They chopped it up to being just her constipated. But she is not. Only maybe once a month, and that is not enough to cause all of these problems. So I refused to go there again. Needless to say, the doctor got permission for me to take her to another specialist, who deals with primarly adults. Much older people. But he was willing to do this for me.
When we left the doctors that day, we went back to the church, I needed another prayer for her, I was missing something, I asked God to help me understand the pain my daughter was feeling so I could tell the doctors where to begin. The Pastor was surprised to see me, but took me and the girls to the sanctuary, and prayed for us.
It never occured to me until after the specialist visit today, but my prayers were answered, I just never saw the signs. Let me explain.
I had a pain in my shoulder, I was given medicine, two days after I asked for God to give me the pain so I could understand. This medicine, it caused my kidney to swell, and there was a lot of pain. A lot of pain, for about a week straight, and even up until yesterday. The pain, it is gone now. I can breathe, and sit in a normal position. The meds say that there is a 1% chance I would get a kidney stone. But the doctor said it was most likely not the problem, and to simply wait it out and see if the pain would go away. It just so happened to be my left kidney.
This afternoon I took Cymmone to the specialist, and he was as nice as nice could be. He was pretty upset that the doctor did not listen to my concerns a few weeks ago, and he grew even more concerned when he learned that Cymmones pain was much higher in her stomach area. He did a sonogram and found that her pain was from a swollen kidney.
There are a lot of tests that he needs to run on her. Tests that would make a grown person cry from having them done. He said he would put Cymmone to sleep to perform some of the procedures so I did not have to hear her cry and she did not have to be in pain.
So one more step closer, closer than we have ever been. God will heal her, he will help the doctors find the problem. I hate putting her through all of this, but I can't bear the thought of her losing a kidney or dying because of this problem.
Right now, he thinks it could be reflux in the bladder, and that it could be spitting the infection back up to her kidneys. This happens from having way to many UTI's. Why she is having so many UTI's, well we still have to find the answer to that one. I am starting to think it is something in her diet. Something she does not get all of the time, but every 3-5 months. Some food, something she is eating. I am thinking about starting a log of the food she eats. SeKoixa used to get yeast infections from apple juice concentrate as a little baby. So I am thinking that there is something simple, something like that, something she is allergic to, or that her body can not break down. After all of this, I know God will lead me in the right direction, and bring Cymmone back to good health.
I love my kids, and will do anything for them, anything!
SeKoixa and I had the opportunity to decorate the christmas tree at the Georgia State Capitol. We had so much fun. We went up just before her rehearsal for the Nutcracker, and spent a better part of the day testing the lights, and fluffing the poinsettas, and watering the tree. The tree is so huge. Cymmone was sad she was not able to come. She went with her dad this year for Thanksgiving.
those who want to read about the program. This exhibit includes pieces created by children attending mainstream to special education classrooms working with VSA arts affiliate schools and centers around the world. The program is geared towards special needs children, but they also work with other children who are interested in becoming an artist. Well SeKoixa, she sure made me proud. I have bragging rights now. 
This year SeKoixa has been selected to perform in the Nutcracker. Her school's choir was chosen to participate. She was hesitant at first, but I told her if she does not try something new she will miss out later on in life. So she tried it, and loves it. She is so cute how she does her dance. We went down to get her picture done at the Ballet Studio, and they fitted her with a Chinese costume. I think it is cute. She will be doing a special dance called the dream. It is something new they are trying.
